Tuesday, December 13, 2011

The Surgery: Craniosynostosis Repair Day 4 - Present

Need to catch up? Here are links to all the Cranio posts in chronological order:

Day 4: October 27
By day 4, it felt like we had been through a war. We were exhausted (mentally and physically), beat up. But our little man was rearing to go. He was wire-free (we were calling him Deacon 2.0) and a smiling ball of energy. It was like nothing had ever happened to him. It's absolutely amazing how quickly he recovered.

Today: December 13
Almost two months past the surgery and Deacon is doing better than ever! The scar is completely healed and the dissolveable stitches have all come out.
And the most amazing part is how quickly he has caught up in his development. Almost immediately after we returned home, I began to notice how much more alert he was. he had a twinkle in his eyes that hadn't been there before. He became interested in solids and began eating purees for the first time a week after he came home. His hair began growing at record speed. He began reaching for things and holding on to them. He's teething now. And just recently he began putting weight on his feet. We found out during a post-op appointment that when they went in to operate, they saw that his brain was pretty compacted and blood flow was definitely limited. That explains a lot of the "delays" that I picked up on before the surgery.

Modern medicine and technology is a beautiful thing. I am so thankful that God blessed our doctors with the knowledge and true genius to do what they do. I could never thank them enough.

And now we are here - on the other side of Craniosynostosis. Happy. Healthy. Healed. And thankful each and every day.


  1. You are a brave wonderful mommy with a very lucky baby boy. I cried reading this story. There was just so much love in it. Thank you so much for sharing this journey with us.

  2. Thanks : ) It was hard to write, but I needed to do it.

  3. wow, this is awesome!! thank you so much for sharing this victory with us. I was just thinking about the little guy the other day. I have a 3 month old, and when I first read your blog about the surgery, I looked at my little one and could only imagine what you were going through and feeling.
    And the fact that you see such a difference in so little time is such a blessing and a wonderful Christmas present!

  4. oh thank goodness!! This is an amazing update!!